Welcome to UKFibro Aware! A Non-Profit Organisation aiming to promote awareness of Fibromyalgia Syndrome in the United Kingdom.
UKFibro Aware has a website at http://www.ukfibroaware.webs.com/
Also a site on MySpace http://www.myspace.com/ukfibroaware and
A presence on FaceBookat http://www.facebook.com/pages/UKFibro-Aware/10335813878?ref=nf
With a Profile page at http://www.facebook.com/profile.php?id=721940554
Please contact me for further information
Gentle Hugzz
Hana
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Tags: fibro, fibromyalgia, fms
March 30, 2008 at 12:45 pm |
May I say how pleased I am to be invited to become a contributor on this brand new weblog – not set up by me but Hana. I am a great fan of wordpress and believe they do a grand job. I love the heading (congrats to Hana) and I hope it will attract a lot of interest and may it go from strength to strength.
As a fibromite myself my message is about spreading awareness and raising funds for research to find a cure for fibromyalgia. Quite apart from the fact that my fibro fog confuses my writing sometimes I am doing okay. I am a professional journalist and you can Google me.
FIBRO WHAT? FIGHTS BACK
by Jeanne Hambleton© 2008
NFA Leader Against Pain – International Advocate
How often have we all said we are sick of folk saying ‘fibro what’ when we try to describe how we feel? Help is at hand! It is now set to music and you just hand those folk the new Fibro What? singles CD and sit back and listen.
Not only will they hear the upbeat lyrics comedy singer song writer Dom Collins has set to music, all about our invisible condition, aches and pains, but you can both listen to three cheeky tongue in cheek songs donated by our man from Manchester, and have a good giggle. Laughter is the best medicine they say. You don’t have to have fibromyalgia to have a good laugh with Dom Collins as well as supporting fibromyalgia. The proceeds will help research and maybe lead to a cure.
Our bright lad, well known on the northern circuits for his good clean humour and funny songs about every day life, has written the Fibro What song to help his friend, fibromite Christine Thomson.
“I wanted to do something to raise awareness for May 12 and when Dom offered to help I was delighted. I am fed up with the lack of government funding and doctors still telling us it is all in our heads, and I am anxious everyone should know more about our invisible disability. I also felt it was important to highlight the need for research to find a cure. So the proceeds from sales will go towards Jeanne Hambleton’s new book PAIN 24/7 The Fibromyalgia Jigsaw©, due to be published in the summer, as the sales money from the book will go to research. “The more books we sell the more money for research,” said Chris.
Holding a new contract with a well-known agent Dom expects to be busy playing, singing and making people laugh for the foreseeable future. His reviews compare him to Mike Harding and Richard Digance and claim Dom will go far. With a cheeky grin Dom told us he loves to entertain and is available for any special occasion from divorces, funerals, vasectomies, wedding, birthdays and corporate affairs.
Both Chris and I are delighted to have worked with Dom in these early stages of his future career and, on behalf of almost two million fibromites, we cannot thank him enough for simply caring and helping to raise awareness about fibromyalgia.
Delighted with the new CD, which uses her photographs, Chris wants to offer the new CD to Fibromyalgia Support Groups to sell and play on May 12 at the special events to raise awareness about this rotten disability and make sure individual fibromites and the public have the chance to buy a copy.
ROYAL CONNECTIONS
This is the second time this year that Dom has been benevolent. In January he wrote ‘Jack’s Song’s, a tribute to Jack Judge, the writer of the WWI favourite ‘It’s a long way to Tipperary’. Dom donated the proceeds of this CD to the Army Benevolent Fund (North West).
His first charity CD attracted letters of support from four members of the Royal family, HM the Queen who sent a lovely letter of thanks; HRH Prince Charles, the Princess Royal, HRH Princess Anne and HRH Prince Edward who all welcomed his support for the Army Benevolent Fund. He also received nice letters of congratulations from our PM Gordon Brown and Leader of the Opposition David Cameron. These can be viewed on Doms Blog on his website. Needless to say copies of Fibro What will be winging their way to Buckingham Palace.
For more details about Dom and his work log on to http://www.domcollins.co.uk. If you click MY SPACE top right hand corner you will hear some of the funny backing tracks and a verse or two from the new Fibro What CD. The tracks include “A Girl called Chips”, “Can you lend me a tenner, Dad?” and “Does my ar.. look big in these?”
Copies of the new CD Fibro What are available from jeannehambleton@mac.com and will cost £3.75 plus £1 p&p for a UK packing and postage…total £4.75. Overseas postage will be advised. We hope you enjoy the Fibro What? CD and that your friends want you to buy a copy for them.
But Fibro What? CD is just part of the story? There is a new fibromyalgia book on the way later this year. Written as a labour of love and self-published to preserve as much money as possible, sales money will contribute to research to find a cure for fibromyalgia – the pain we live with for the rest of our lives. May 12 is International Fibromyalgia Awareness Day and we hope that you and your friends will be listening and laughing with Dom’s cheeky songs and selling copies to other folk to support the cause.
Later in the year for a week in September, it is UK Fibro Awareness Week. To celebrate this we will be holding The Folly Pogs Ball, a cabaret dinner in West Sussex full of comedy, humour and mirth to raise funds for research. We are planning a charity auction hopefully with some celebrity donations. If you have any souvenirs you feel able to donate – maybe some of your art work, craft, unwanted gifts, we will be delighted. Please contact me at jeannehambleton@mac.com . If you are interested in tickets and maybe an overnight stay at the Chichester Park Hotel, keep in touch, as we are still in the planning stages.
With the present government making no effort to put aside a substantial sum of money for research, we have to do it ourselves with help from friends like you. Thank you. Take care Jeanne.
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March 31, 2008 at 6:38 am |
Thanks for the lovely comments Jeanne. Great to have you on board
Gentle Hugzz
Hana